Skip to content
Search
DONATE
Facebook
Instagram
X-twitter
Linkedin
Youtube
WORLD CONGRESS
NEWS
EVENTS
ABOUT ORSA
ABOUT ORSA CANADA
35 YEARS OF ORSA CANADA
BOARD OF DIRECTORS
CODE OF CONDUCT
STRATEGIC PLAN
BY-LAWS
AWARDS & RECONGITION
ANNUAL GENERAL MEETINGS
2022 COMMITTEE REPORTS
2023 COMMITTEE REPORTS
2024 COMMITTEE REPORTS
2025 COMMITTEE REPORTS
2026 COMMITTEE REPORTS
ABOUT RETT
FOR FAMILIES
NEWLY DIAGNOSED
MEMBERSHIP
CLINICS
COMBINED INSURANCE
RESOURCES
PROGRAMS AND SUPPORTS
SIBILING SUPPORT
ADULT SUPPORT
RETT ROUNDS
OCTOBER AWARENESS
GIFT IDEAS
QUALITY OF LIFE
ADVANCE CARE PLANNING
RESEARCH
SCIENTIFIC ADVISORY BOARD
HOPE FUND RESEARCH GRANT
GRANT RECIPIENTS
DRUG APPROVAL PROCESS
CLINICAL TRIALS
CLINICAL TRIAL FAQ
BIO-BANK REPOSITORY
PUBLICATIONS
FUNDRAISING
FUNDRAISING
DONATE
CONTACT US
Rett Syndrome Publications
WORLD CONGRESS
NEWS
EVENTS
ABOUT ORSA
ABOUT ORSA CANADA
35 YEARS OF ORSA CANADA
BOARD OF DIRECTORS
CODE OF CONDUCT
STRATEGIC PLAN
BY-LAWS
AWARDS & RECONGITION
ANNUAL GENERAL MEETINGS
2022 COMMITTEE REPORTS
2023 COMMITTEE REPORTS
2024 COMMITTEE REPORTS
2025 COMMITTEE REPORTS
2026 COMMITTEE REPORTS
ABOUT RETT
FOR FAMILIES
NEWLY DIAGNOSED
MEMBERSHIP
CLINICS
COMBINED INSURANCE
RESOURCES
PROGRAMS AND SUPPORTS
SIBILING SUPPORT
ADULT SUPPORT
RETT ROUNDS
OCTOBER AWARENESS
GIFT IDEAS
QUALITY OF LIFE
ADVANCE CARE PLANNING
RESEARCH
SCIENTIFIC ADVISORY BOARD
HOPE FUND RESEARCH GRANT
GRANT RECIPIENTS
DRUG APPROVAL PROCESS
CLINICAL TRIALS
CLINICAL TRIAL FAQ
BIO-BANK REPOSITORY
PUBLICATIONS
FUNDRAISING
FUNDRAISING
DONATE
CONTACT US
Rett Syndrome Publications
Search
WORLD CONGRESS
NEWS
EVENTS
ABOUT ORSA
ABOUT ORSA CANADA
35 YEARS OF ORSA CANADA
BOARD OF DIRECTORS
CODE OF CONDUCT
STRATEGIC PLAN
BY-LAWS
AWARDS & RECONGITION
ANNUAL GENERAL MEETINGS
2022 COMMITTEE REPORTS
2023 COMMITTEE REPORTS
2024 COMMITTEE REPORTS
2025 COMMITTEE REPORTS
2026 COMMITTEE REPORTS
ABOUT RETT
FOR FAMILIES
NEWLY DIAGNOSED
MEMBERSHIP
CLINICS
COMBINED INSURANCE
RESOURCES
PROGRAMS AND SUPPORTS
SIBILING SUPPORT
ADULT SUPPORT
RETT ROUNDS
OCTOBER AWARENESS
GIFT IDEAS
QUALITY OF LIFE
ADVANCE CARE PLANNING
RESEARCH
SCIENTIFIC ADVISORY BOARD
HOPE FUND RESEARCH GRANT
GRANT RECIPIENTS
DRUG APPROVAL PROCESS
CLINICAL TRIALS
CLINICAL TRIAL FAQ
BIO-BANK REPOSITORY
PUBLICATIONS
FUNDRAISING
FUNDRAISING
DONATE
CONTACT US
Rett Syndrome Publications
WORLD CONGRESS
NEWS
EVENTS
ABOUT ORSA
ABOUT ORSA CANADA
35 YEARS OF ORSA CANADA
BOARD OF DIRECTORS
CODE OF CONDUCT
STRATEGIC PLAN
BY-LAWS
AWARDS & RECONGITION
ANNUAL GENERAL MEETINGS
2022 COMMITTEE REPORTS
2023 COMMITTEE REPORTS
2024 COMMITTEE REPORTS
2025 COMMITTEE REPORTS
2026 COMMITTEE REPORTS
ABOUT RETT
FOR FAMILIES
NEWLY DIAGNOSED
MEMBERSHIP
CLINICS
COMBINED INSURANCE
RESOURCES
PROGRAMS AND SUPPORTS
SIBILING SUPPORT
ADULT SUPPORT
RETT ROUNDS
OCTOBER AWARENESS
GIFT IDEAS
QUALITY OF LIFE
ADVANCE CARE PLANNING
RESEARCH
SCIENTIFIC ADVISORY BOARD
HOPE FUND RESEARCH GRANT
GRANT RECIPIENTS
DRUG APPROVAL PROCESS
CLINICAL TRIALS
CLINICAL TRIAL FAQ
BIO-BANK REPOSITORY
PUBLICATIONS
FUNDRAISING
FUNDRAISING
DONATE
CONTACT US
Rett Syndrome Publications
WORLD CONGRESS
NEWS
EVENTS
ABOUT ORSA
ABOUT ORSA CANADA
35 YEARS OF ORSA CANADA
BOARD OF DIRECTORS
CODE OF CONDUCT
STRATEGIC PLAN
BY-LAWS
AWARDS & RECONGITION
ANNUAL GENERAL MEETINGS
2022 COMMITTEE REPORTS
2023 COMMITTEE REPORTS
2024 COMMITTEE REPORTS
2025 COMMITTEE REPORTS
2026 COMMITTEE REPORTS
ABOUT RETT
FOR FAMILIES
NEWLY DIAGNOSED
MEMBERSHIP
CLINICS
COMBINED INSURANCE
RESOURCES
PROGRAMS AND SUPPORTS
SIBILING SUPPORT
ADULT SUPPORT
RETT ROUNDS
OCTOBER AWARENESS
GIFT IDEAS
QUALITY OF LIFE
ADVANCE CARE PLANNING
RESEARCH
SCIENTIFIC ADVISORY BOARD
HOPE FUND RESEARCH GRANT
GRANT RECIPIENTS
DRUG APPROVAL PROCESS
CLINICAL TRIALS
CLINICAL TRIAL FAQ
BIO-BANK REPOSITORY
PUBLICATIONS
FUNDRAISING
FUNDRAISING
DONATE
CONTACT US
Rett Syndrome Publications
NEWS
NEWS
Partnering with UCB
July 9, 2026
Read More »
Taysha Gene Therapies Update
June 22, 2026
Read More »
Official ORSA Canada Merch
June 12, 2026
Read More »
35 YEARS OF ORSA CANADA
February 2, 2026
Read More »
SIGN OUR PETITION
January 27, 2026
Read More »
CORD 2025 Fall Conference update
November 27, 2025
Read More »
Page
1
Page
2
Page
3
Page
4
Page
5
Partnering with UCB
July 9, 2026
Read More »
Taysha Gene Therapies Update
June 22, 2026
Read More »
Official ORSA Canada Merch
June 12, 2026
Read More »
35 YEARS OF ORSA CANADA
February 2, 2026
Read More »
SIGN OUR PETITION
January 27, 2026
Read More »
CORD 2025 Fall Conference update
November 27, 2025
Read More »
Page
1
Page
2
Page
3
Page
4
Page
5
SEARCH FOR MORE NEWS BELOW
Search
