The Rett Syndrome Handbook is recommended reading for all new families and is a useful guide for health care practitioners who are not familiar with Rett syndrome. We offer to ship a copy of the book to all newly diagnosed families.
This booklet has been produced by the Rett syndrome study team at the Telethon Institute for Child Health Research, Perth, Western Australia.
The aim is to provide a ready reference for families and carers on the best ways of improving the nutritional and digestive health of individuals with Rett syndrome.
This booklet has been produced by the Rett syndrome study team at the Telethon Institute for Child Health Research, Perth, Western Australia.
The aim is to provide a ready reference for families and carers on the best ways of improving the nutritional and digestive health of girls and women with Rett syndrome.
This research shows insight into the patterns of growth in Rett syndrome which should help clinicians interpret measurements of height, weight, and head circumference.
Facebook - Ontario Rett Family Group
This private Facebook group is independently managed and is not affiliated with or monitored by ORSA Canada. It is open to Canadian families caring for an individual with Rett syndrome.
