Below is a list of government programs and associations that may assist individuals with Rett syndrome. These programs and associations are not related to, or recommended by ORSA Canada, and in no way does ORSA Canada guarantee funding or support from any of these programs or associations.
Accessible Parking Permit
Learn how to apply, change, replace, or renew your parking permit.
Supporting people living with neurodevelopmental disorders and their families.
Support Your Way provides families, individuals and professionals with information and links to support services in local communities across the province.
Passport provides funding for adults with developmental disabilities to support community participation, daily activities, and person-directed planning. It also offers respite funding for primary caregivers.
Funding program for adults with a developmental disability, for community participation, activities of daily living, and caregiver respite.
MODC helps individuals be as independent as possible through modifications to your home and vehicle. Provides funding for basic home and/or vehicle modifications
The child disability benefit (CDB) is a tax-free monthly payment made to families who care for a child under age 18 with a severe and prolonged impairment in physical or mental functions.
The disability tax credit (DTC) is a non-refundable tax credit that helps people with disabilities, or their supporting family member, reduce the amount of income tax they may have to pay.
The Assistive Devices Program (ADP) helps people with long-term physical disabilities pay for customized equipment, like wheelchairs and also helps cover the cost of specialized supplies.
Learn about funding to help with costs related to respite, support for daily activities, personal growth and development for your child with physical and/or developmental disabilities.
Learn about financial support to help families with the costs of caring for a child with severe disabilities and find out how to apply.
A program to allow eligible individuals to receive funding to purchase home care services or employ care providers. Learn more.
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Family-Managed Home Care is designed for eligible patients in the following groups:
- Children with complex medical needs
- Adults with acquired brain injuries
- Eligible home-schooled children
- Patients in extraordinary circumstances, as assessed by Ontario Health atHome
The Enhanced Respite for Medically Fragile and/or Technology Dependent Children (Enhanced Respite) program provides funding directly to families of medically fragile and/or technology dependent children to purchase respite services. It can be provided in addition to other respite services.
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Beginning in 2023-24, families may be eligible for up to $4,130 annually, per child.
Families, who may qualify for this grant have children who
- rely on medical and technological equipment, such as mechanical ventilators, apnea monitors, renal dialysis, urinary catheters, colostomy bags
- are administered drugs intravenously
- rely on tracheotomy tube care, suctioning, oxygen support or tube feeding
Easter Seals Canada is a federated organization, with offices in all 10 provinces. A national Board of Directors — made up of members representing each province — supports a national staff and provincial organizations that plan and deliver all programs, services and fundraising activity across the country.
Wishes are full of fun and joy but the impact on sick children and families is much bigger than that. A wish is essential to improve the health outcomes of children with critical illnesses.
Our Children and Youth Services Program offers three programs that can help children, youth, and families: Access Service Coordinated Service Planning FASD Service
They provide a wide range of health care services and resources that are covered through the Ontario Health Insurance Plan (OHIP), and can be provided in a patient’s home or at a nurs Access Service Coordinated Service Planning FASD Service
Through your donations to the Legion Poppy Fund, the Legion provides financial assistance and support to Veterans, including Canadian Armed Forces and RCMP, and their families who are in need.
For The Needy Not The Greedy... collecting, repairing and distributing used mobility aids and assistive devices.
This group is a place for Canadian families with special needs children to post pediatric special needs equipment items to donate, sell or that they are in search of.
Quebec Rett Syndrome Association
