{"id":46407,"date":"2026-07-09T15:04:39","date_gmt":"2026-07-09T19:04:39","guid":{"rendered":"https:\/\/rett.ca\/partenariat-avec-ucb\/"},"modified":"2026-07-09T15:06:27","modified_gmt":"2026-07-09T19:06:27","slug":"partenariat-avec-ucb","status":"publish","type":"post","link":"https:\/\/rett.ca\/fr\/partenariat-avec-ucb\/","title":{"rendered":"Partenariat avec UCB"},"content":{"rendered":"\t\t
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Nous sommes heureux de vous annoncer qu’ORSA Canada s’associe officiellement \u00e0 UCB dans le cadre de ses efforts mondiaux de d\u00e9fense des droits des patients atteints du syndrome de Rett.<\/div>

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Il s’agit d’une avanc\u00e9e importante pour notre communaut\u00e9 canadienne du syndrome de Rett. Quatre sites d’essais cliniques au Canada devraient devenir actifs au fur et \u00e0 mesure que l’\u00e9tude progresse dans le processus d’approbation. Nous partagerons davantage d’informations d\u00e8s que des mises \u00e0 jour seront disponibles. <\/div>

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Cette \u00e9tude clinique de phase 3 \u00e9value le chlorhydrate de fenfluramine (FINTEPLA\u00ae), un traitement exp\u00e9rimental, par rapport \u00e0 un placebo. L’\u00e9tude est con\u00e7ue pour \u00e9valuer l’efficacit\u00e9 et l’innocuit\u00e9 de la fenfluramine chez les personnes vivant avec le syndrome de Rett, dans le but de mieux comprendre son impact potentiel sur les sympt\u00f4mes et la qualit\u00e9 de vie. <\/div>\n<\/div>\n
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ORSA Canada est fier de travailler aux c\u00f4t\u00e9s d’organisations de d\u00e9fense des droits des patients du monde entier pour contribuer \u00e0 faire entendre la voix des familles tout au long de ce parcours.<\/div>

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Nous sommes impatients de soutenir notre communaut\u00e9 et fournirons plus de d\u00e9tails lorsque le recrutement des participants commencera.<\/div>\n<\/div>\n
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Pour en savoir plus sur l’\u00e9tude, y compris les emplacements pr\u00e9vus des essais cliniques au Canada, consultez :<\/div>\n
https:\/\/clinicaltrials.gov\/study\/NCT07503444?cond=rett%20syndrome&term=UCB&viewType=Card&rank=1#locations<\/a><\/span><\/div>\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

s’associe \u00e0 ucb Nous sommes heureux de vous annoncer qu’ORSA Canada s’associe officiellement \u00e0 UCB dans le cadre de ses efforts mondiaux de d\u00e9fense des droits des patients atteints du syndrome de Rett. Il s’agit d’une avanc\u00e9e importante pour notre communaut\u00e9 canadienne du syndrome de Rett. Quatre sites d’essais cliniques au Canada devraient devenir actifs […]<\/p>\n","protected":false},"author":5,"featured_media":46408,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[152],"tags":[],"class_list":["post-46407","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-categorise"],"yoast_head":"\nPartenariat avec UCB - Ontario Rett Syndrome Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rett.ca\/fr\/partenariat-avec-ucb\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Partenariat avec UCB - Ontario Rett Syndrome Association\" \/>\n<meta property=\"og:description\" content=\"s’associe \u00e0 ucb Nous sommes heureux de vous annoncer qu’ORSA Canada s’associe officiellement \u00e0 UCB dans le cadre de ses efforts mondiaux de d\u00e9fense des droits des patients atteints du syndrome de Rett. 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