{"id":45953,"date":"2025-11-27T09:11:29","date_gmt":"2025-11-27T14:11:29","guid":{"rendered":"https:\/\/rett.ca\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/"},"modified":"2025-11-27T09:16:41","modified_gmt":"2025-11-27T14:16:41","slug":"mise-a-jour-de-la-conference-dautomne-2025-de-cord","status":"publish","type":"post","link":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/","title":{"rendered":"Mise \u00e0 jour de la conf\u00e9rence d’automne 2025 de CORD"},"content":{"rendered":"\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Conf\u00e9rence d'automne 2025 de CORD<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
Nous sommes reconnaissants \u00e0 l’Organisation canadienne des maladies rares d’avoir invit\u00e9 ORSA Canada \u00e0 prendre la parole sur la Colline du Parlement au nom de notre communaut\u00e9 et \u00e0 plaider pour un acc\u00e8s \u00e9quitable aux m\u00e9dicaments pour les Canadiens atteints du syndrome de Rett.<\/div><\/div>
****<\/div>
Chers membres du Parlement, participants \u00e0 CORD, repr\u00e9sentants de l’industrie, responsables de la sant\u00e9, d\u00e9fenseurs, familles et patients atteints de maladies rares,<\/div><\/div>
Imaginez vivre chaque jour avec les d\u00e9fis de la maladie de Parkinson, de la paralysie c\u00e9r\u00e9brale, de l’\u00e9pilepsie, de l’anxi\u00e9t\u00e9 et de l’autisme, tous en m\u00eame temps. C’est la vie d’une personne atteinte du syndrome de Rett. Elle n\u00e9cessite des soins 24 heures sur 24, 7 jours sur 7, avec un ratio de 1:1 jusqu’\u00e0 son dernier souffle. Ce trouble neurod\u00e9veloppemental g\u00e9n\u00e9tique rare affecte ma fille Ella, et beaucoup d’autres comme elle. <\/div><\/div>
Ici, au Canada, environ 600 \u00e0 900 personnes vivent avec ce trouble d\u00e9vastateur. Les familles se r\u00e9veillent chaque jour confront\u00e9es \u00e0 des difficult\u00e9s respiratoires, des mouvements incontr\u00f4l\u00e9s, des probl\u00e8mes d’alimentation, des troubles du sommeil et la r\u00e9alit\u00e9 d\u00e9chirante que leurs proches ne peuvent pas communiquer leurs besoins fondamentaux. <\/div><\/div>
MAIS IL Y A DE L’ESPOIR !<\/div><\/div>
Pour la premi\u00e8re fois, il existe un traitement approuv\u00e9 par Sant\u00e9 Canada qui peut aider les cellules c\u00e9r\u00e9brales \u00e0 \u00e9tablir de meilleures connexions, favorisant ainsi l’am\u00e9lioration de la communication, du comportement et des mouvements.<\/div>
C’est l’espoir que la communaut\u00e9 du syndrome de Rett attendait. L’espoir qui pourrait enfin offrir une meilleure qualit\u00e9 de vie. <\/div><\/div>
MAIS IL Y A UN PI\u00c8GE.<\/div><\/div>
Le seul traitement approuv\u00e9 par Sant\u00e9 Canada pour le syndrome de Rett s’est vu refuser le remboursement par l’Agence canadienne des m\u00e9dicaments.<\/div>
\u2022 Aucune approbation conditionnelle.<\/div>
\u2022 Aucune possibilit\u00e9 de recueillir des donn\u00e9es r\u00e9elles.<\/div>
\u2022 Aucune voie \u00e0 suivre pour les familles qui n’ont pas les moyens de payer de leur poche.<\/div><\/div>
L’impact de cette d\u00e9cision n\u00e9gative ne peut \u00eatre sous-estim\u00e9. L’Alliance pancanadienne pharmaceutique refuse toutes les n\u00e9gociations, tandis que les assureurs priv\u00e9s refusent \u00e9galement la couverture. <\/div>
Ainsi, \u00e0 moins de gagner \u00e0 la loterie ou d’avoir acc\u00e8s \u00e0 une richesse importante, ce traitement restera hors de port\u00e9e pour la plupart.<\/div><\/div>
LES FAMILLES ATTEINTES DU SYNDROME DE RETT M\u00c9RITENT MIEUX !<\/div><\/div>
Malgr\u00e9 des d\u00e9cennies d’attente, malgr\u00e9 les preuves scientifiques solides, malgr\u00e9 le fait que nos voisins du sud et les familles \u00e0 travers l’Europe ont acc\u00e8s \u00e0 ce m\u00e9dicament, et malgr\u00e9 le fait que certaines familles canadiennes d\u00e9racinent leur vie, quittant leur maison, leur emploi et leurs r\u00e9seaux de soutien pour chercher ce traitement ailleurs, le syst\u00e8me continue de d\u00e9montrer son incapacit\u00e9 \u00e0 suivre les progr\u00e8s scientifiques modernes et le syst\u00e8me d\u00e9montre un manque de compassion pour les personnes atteintes de maladies rares. <\/div><\/div>
ALORS, demandez-vous,<\/div>
Qu’est-ce que cela r\u00e9v\u00e8le de l’engagement du Canada envers les maladies rares ?<\/div>
Pourquoi seulement certaines maladies rares ont-elles acc\u00e8s aux th\u00e9rapies approuv\u00e9es ?<\/div>
Est-ce la taille de la communaut\u00e9 ? Ou est-ce simplement qu’une condition comme le syndrome de Rett est trop rare et affecte trop peu de personnes pour que cela compte ? <\/div><\/div>
Aujourd’hui, nous ne cherchons pas un traitement sp\u00e9cial. Seulement un acc\u00e8s \u00e9quitable \u00e0 un m\u00e9dicament existant, un m\u00e9dicament qui est d\u00e9j\u00e0 approuv\u00e9, et un m\u00e9dicament qui donne de l’espoir aux familles du monde entier. <\/div><\/div>
Le Canada doit s’assurer que sa strat\u00e9gie en mati\u00e8re de maladies rares ne se limite pas \u00e0 des mots sur papier, mais qu’elle constitue un v\u00e9ritable engagement envers l’\u00e9quit\u00e9, l’acc\u00e8s et la compassion pour toutes les personnes atteintes d’une maladie rare.<\/div><\/div>
Merci,<\/div>
Sabrina Millson, Pr\u00e9sidente<\/div>
Association du syndrome de Rett de l’Ontario du Canada<\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Conf\u00e9rence d’automne 2025 de CORD Nous sommes reconnaissants \u00e0 l’Organisation canadienne des maladies rares d’avoir invit\u00e9 ORSA Canada \u00e0 prendre la parole sur la Colline du Parlement au nom de notre communaut\u00e9 et \u00e0 plaider pour un acc\u00e8s \u00e9quitable aux m\u00e9dicaments pour les Canadiens atteints du syndrome de Rett.****Chers membres du Parlement, participants \u00e0 CORD, […]<\/p>\n","protected":false},"author":5,"featured_media":45954,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[152],"tags":[],"class_list":["post-45953","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-categorise"],"yoast_head":"\nMise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association\" \/>\n<meta property=\"og:description\" content=\"Conf\u00e9rence d’automne 2025 de CORD Nous sommes reconnaissants \u00e0 l’Organisation canadienne des maladies rares d’avoir invit\u00e9 ORSA Canada \u00e0 prendre la parole sur la Colline du Parlement au nom de notre communaut\u00e9 et \u00e0 plaider pour un acc\u00e8s \u00e9quitable aux m\u00e9dicaments pour les Canadiens atteints du syndrome de Rett.****Chers membres du Parlement, participants \u00e0 CORD, […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\" \/>\n<meta property=\"og:site_name\" content=\"Ontario Rett Syndrome Association\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/OntarioRettSyndromeAssociation\" \/>\n<meta property=\"article:published_time\" content=\"2025-11-27T14:11:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-11-27T14:16:41+00:00\" \/>\n<meta name=\"author\" content=\"smillson@rett.ca\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@OntarioRettSA\" \/>\n<meta name=\"twitter:site\" content=\"@OntarioRettSA\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"smillson@rett.ca\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\"},\"author\":{\"name\":\"smillson@rett.ca\",\"@id\":\"https:\/\/rett.ca\/fr\/#\/schema\/person\/212db7fb0e868b74ae9733883cebcbf3\"},\"headline\":\"Mise \u00e0 jour de la conf\u00e9rence d’automne 2025 de CORD\",\"datePublished\":\"2025-11-27T14:11:29+00:00\",\"dateModified\":\"2025-11-27T14:16:41+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\"},\"wordCount\":671,\"publisher\":{\"@id\":\"https:\/\/rett.ca\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg\",\"articleSection\":[\"Non cat\u00e9goris\u00e9\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\",\"url\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\",\"name\":\"Mise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association\",\"isPartOf\":{\"@id\":\"https:\/\/rett.ca\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg\",\"datePublished\":\"2025-11-27T14:11:29+00:00\",\"dateModified\":\"2025-11-27T14:16:41+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage\",\"url\":\"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg\",\"contentUrl\":\"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg\",\"width\":720,\"height\":540},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/rett.ca\/fr\/accueil\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Mise \u00e0 jour de la conf\u00e9rence d’automne 2025 de CORD\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/rett.ca\/fr\/#website\",\"url\":\"https:\/\/rett.ca\/fr\/\",\"name\":\"Ontario Rett Syndrome Association of Canada\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/rett.ca\/fr\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/rett.ca\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/rett.ca\/fr\/#organization\",\"name\":\"Ontario Rett Syndrome Association of Canada\",\"url\":\"https:\/\/rett.ca\/fr\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/rett.ca\/fr\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/rett.ca\/wp-content\/uploads\/ORSA_35Years_Colour-scaled.png\",\"contentUrl\":\"https:\/\/rett.ca\/wp-content\/uploads\/ORSA_35Years_Colour-scaled.png\",\"width\":2560,\"height\":1340,\"caption\":\"Ontario Rett Syndrome Association of Canada\"},\"image\":{\"@id\":\"https:\/\/rett.ca\/fr\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/OntarioRettSyndromeAssociation\",\"https:\/\/x.com\/OntarioRettSA\",\"https:\/\/www.instagram.com\/ontrettsyndromeassociation\/\",\"https:\/\/www.linkedin.com\/company\/ontario-rett-syndrome-association\",\"http:\/\/www.youtube.com\/@ORSAofficial\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/rett.ca\/fr\/#\/schema\/person\/212db7fb0e868b74ae9733883cebcbf3\",\"name\":\"smillson@rett.ca\",\"url\":\"https:\/\/rett.ca\/fr\/author\/smillsonrett-ca\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Mise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/","og_locale":"fr_FR","og_type":"article","og_title":"Mise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association","og_description":"Conf\u00e9rence d’automne 2025 de CORD Nous sommes reconnaissants \u00e0 l’Organisation canadienne des maladies rares d’avoir invit\u00e9 ORSA Canada \u00e0 prendre la parole sur la Colline du Parlement au nom de notre communaut\u00e9 et \u00e0 plaider pour un acc\u00e8s \u00e9quitable aux m\u00e9dicaments pour les Canadiens atteints du syndrome de Rett.****Chers membres du Parlement, participants \u00e0 CORD, […]","og_url":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/","og_site_name":"Ontario Rett Syndrome Association","article_publisher":"https:\/\/www.facebook.com\/OntarioRettSyndromeAssociation","article_published_time":"2025-11-27T14:11:29+00:00","article_modified_time":"2025-11-27T14:16:41+00:00","author":"smillson@rett.ca","twitter_card":"summary_large_image","twitter_creator":"@OntarioRettSA","twitter_site":"@OntarioRettSA","twitter_misc":{"\u00c9crit par":"smillson@rett.ca","Dur\u00e9e de lecture estim\u00e9e":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#article","isPartOf":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/"},"author":{"name":"smillson@rett.ca","@id":"https:\/\/rett.ca\/fr\/#\/schema\/person\/212db7fb0e868b74ae9733883cebcbf3"},"headline":"Mise \u00e0 jour de la conf\u00e9rence d’automne 2025 de CORD","datePublished":"2025-11-27T14:11:29+00:00","dateModified":"2025-11-27T14:16:41+00:00","mainEntityOfPage":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/"},"wordCount":671,"publisher":{"@id":"https:\/\/rett.ca\/fr\/#organization"},"image":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage"},"thumbnailUrl":"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg","articleSection":["Non cat\u00e9goris\u00e9"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/","url":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/","name":"Mise \u00e0 jour de la conf\u00e9rence d'automne 2025 de CORD - Ontario Rett Syndrome Association","isPartOf":{"@id":"https:\/\/rett.ca\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage"},"image":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage"},"thumbnailUrl":"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg","datePublished":"2025-11-27T14:11:29+00:00","dateModified":"2025-11-27T14:16:41+00:00","breadcrumb":{"@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#primaryimage","url":"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg","contentUrl":"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg","width":720,"height":540},{"@type":"BreadcrumbList","@id":"https:\/\/rett.ca\/fr\/mise-a-jour-de-la-conference-dautomne-2025-de-cord\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/rett.ca\/fr\/accueil\/"},{"@type":"ListItem","position":2,"name":"Mise \u00e0 jour de la conf\u00e9rence d’automne 2025 de CORD"}]},{"@type":"WebSite","@id":"https:\/\/rett.ca\/fr\/#website","url":"https:\/\/rett.ca\/fr\/","name":"Ontario Rett Syndrome Association of Canada","description":"","publisher":{"@id":"https:\/\/rett.ca\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/rett.ca\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/rett.ca\/fr\/#organization","name":"Ontario Rett Syndrome Association of Canada","url":"https:\/\/rett.ca\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/rett.ca\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/rett.ca\/wp-content\/uploads\/ORSA_35Years_Colour-scaled.png","contentUrl":"https:\/\/rett.ca\/wp-content\/uploads\/ORSA_35Years_Colour-scaled.png","width":2560,"height":1340,"caption":"Ontario Rett Syndrome Association of Canada"},"image":{"@id":"https:\/\/rett.ca\/fr\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/OntarioRettSyndromeAssociation","https:\/\/x.com\/OntarioRettSA","https:\/\/www.instagram.com\/ontrettsyndromeassociation\/","https:\/\/www.linkedin.com\/company\/ontario-rett-syndrome-association","http:\/\/www.youtube.com\/@ORSAofficial"]},{"@type":"Person","@id":"https:\/\/rett.ca\/fr\/#\/schema\/person\/212db7fb0e868b74ae9733883cebcbf3","name":"smillson@rett.ca","url":"https:\/\/rett.ca\/fr\/author\/smillsonrett-ca\/"}]}},"jetpack_featured_media_url":"https:\/\/rett.ca\/wp-content\/uploads\/589346730_1223626953130706_2032853429028533352_n.jpg","jetpack_sharing_enabled":true,"publishpress_future_action":{"enabled":false,"date":"2026-06-16 21:46:56","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/posts\/45953","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/comments?post=45953"}],"version-history":[{"count":1,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/posts\/45953\/revisions"}],"predecessor-version":[{"id":45960,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/posts\/45953\/revisions\/45960"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/media\/45954"}],"wp:attachment":[{"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/media?parent=45953"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/categories?post=45953"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rett.ca\/fr\/wp-json\/wp\/v2\/tags?post=45953"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}