Many thank to the International Rett Syndrome Foundation @rettsyndrome.org for hosting the 2024 ASCEND family conference. It was wonderful and heartwarming to re-connect with families, friends, health care professionals and Industry. We are excited to announce our continued… Read More
Priority Review by Health Canada
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Last Updated: 06/22/2024 by Steve
Just announced at the 2024 Ascend Rett National Conference, Health Canada has accepted regulatory applications from Acadia Pharmaceuticals for DayBue (Trofinetide), but has also been accepted for a priority review by Health Canada. We were honored to be… Read More
Annual General Meeting
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Posted: 06/22/2024 by Steve
Our annual general meeting is scheduled for September 11, 2024 at 8pm, please save the date. We will continue to share updates on our website and social media accounts.
O.R.S.A. Advocating for Canadian Families since 1991
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Posted: 06/21/2024 by Steve
Many thank to the International Rett Syndrome Foundation @rettsyndrome.org for hosting the 2024 ASCEND family conference. It was wonderful and heartwarming to re-connect with families, friends, health care professionals and Industry. We are excited to announce our continued… Read More