The information provided in this package is for your reference. The intent is to assist you and your family during a difficult time with options for end-of-life care, resources and supports should you be facing an anticipatory/unexpected death of a loved one with Rett syndrome.
Canadian Mental Health Association: To find your local program go to ontario.cmha.ca; Website also provides literature to provide to families.
Courageous Parents Network CPN | Courageous Parents Network
Bereaved Families of Ontario: bereavedfamilies.net
centerforloss.com – another good resource for helping families who are mourning
afterloss.com – an excellent monthly newsletter for those wishing help at home
fernside.org – a club for kids and teens dealing with death
griefwords.com/index.cgi?action=page&page=articles%2Fmourners.html&site_id=5 –Mourner’s Bill of Rights, Alan D. Wolfelt
centerforloss.com/who-are-you/someone-i-love-has-died/ – The Mourner’s Six “Reconciliation Needs”, Alan D. Wolfelt
speakupontario.ca/resources-for-individuals-and-families/
grievingchildrenlighthouse.org
ourageousparentsnetwork.org/topics/end-of-life-and-bereavement
Book: It’s OK That You’re NOT OK: Meeting Grief and Loss in a Culture That Doesn’t Understand, by Megan Devine
https://www.amazon.ca/Its-That-Youre-Not-Understand/dp/1622039076
https://www.chapters.indigo.ca/en-ca/books/its-ok-that-you-re/9781622039074-item.html
