Hosts of the 2014 Symposium


The Ontario Rett Syndrome Association is proud to organize and host the 2014 Canadian Rett Syndrome Symposium. This will be the first time Canadian scientists, clinicians and representatives from the provincial Rett syndrome groups will be brought together! This exciting event is funded by O.R.S.A. and a grant from the Canadian Institute of Health Research. […]

Conference Co-Chairs Message


This is the most exciting and promising time within the Rett syndrome community since the MECP2 discovery in 1999. There is a greater understanding of this complex disorder. Increased research is being conducted in Canada and around the world to find a treatment and a cure. Drug trials have commenced and will be possible in […]

Canadian Rett Syndrome Registry


The Board of Directors of the Ontario Rett Syndrome Association is extremely proud to announce that the Canadian Rett Syndrome Registry (CRSR) will launch in the spring of 2014.  The establishment of the registry will have a huge impact on all Canadians living with Rett syndrome. It is encouraged that all children and adults with […]

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