Rett Syndrome Awareness Videos
This is the most exciting and promising time within the Rett syndrome community since the MECP2 discovery in 1999. There is a greater understanding of this complex disorder. Increased research is being conducted in Canada and around the world to find a treatment and a cure. Drug trials have commenced and will be possible in […]
The Board of Directors of the Ontario Rett Syndrome Association is extremely proud to announce that the Canadian Rett Syndrome Registry (CRSR) will launch in the spring of 2014. The establishment of the registry will have a huge impact on all Canadians living with Rett syndrome. It is encouraged that all children and adults with […]
April 2014 - Canadian Rett Syndrome Registry Launch. April 25 ~ 27th, We ‘R’ Family Conference, Hamilton, Ontario. June 21st – Golf Tournament, London, Ontario. July 26th – Neuro-Palooza, Paris, Ontario. August 16th – Ride 4 Rett, Kingston, Ontario. September 21st – Run 4 Rett ~ 10th Anniversary, Richmond Hill, Ontario. October Rett Awareness Month.
2nd Annual Ref4Rett was held February 1st. Updates will be coming to the site, please visit again.