Silent Angel Golf Day

8th Annual Silent Angel Golf Day

          9TH ANNUAL GOLF DAY —- Saturday June 8, 2013 The Willow’s, Hwy 74 at Nilestown Registration: 11:30 am & 1:30 pm Shot Gun Start/Best Ball Format 18 HOLES – $80.00 p/p – with Cart – $90.00 p/p 9 HOLES – $65.00 p/p – with Cart – $75.00 p/p Dinner only – [...]

RIDE 4 RETT

RIDE 4 RETT

On June 22nd, 2013, rev up your hogs and RIDE 4 RETT!  The Canadian Army Veterans (CAV) with Jeff Page leading this fundraising event, urge you to make the trek out to Kingston, ON and enjoy a scenic 220km (approx.) ride through the country.  Our theme this year is “The Amazing Race” and each station [...]

RUN4RETT

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The Ontario Rett Syndrome Association 8th annual Run4Rett was a success again this year. Some 400 participants took part on this cool and clear day. A warm heart and spirit soon turned the cool morning warm with many friends and people gathering to have conversation while readying for the races. The event again was held [...]

Neurological Health Charities Canada

 

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Neurological Health Charities Canada exists to improve the quality of life for all persons with chronic brain conditions, and their caregivers, by: elevating brain health to the top of government agendas; increasing awareness and influencing government decision makers regarding brain health; and, ensuring that research, prevention, treatments and supports for those living with chronic brain conditions are universally accessible and fully funded.

The Ontario Rett Syndrome Association is a proud member of Neurological Health Charities Canada.  Our representatives participate in planning and advocacy to provide a voice for our members living with Rett syndrome and their families.  We believe that our advocacy efforts are stronger by being a part of this effective umbrella organization.

Brain matters – The National Population Health Study of Neurological Conditions is ongoing across Canada. We are conducting research on the scope, impact, risk factors and health service utilization of neurological conditions. Results will start coming out in May of 2013.  This research will help you, your family and/or your caregivers. Do you want to know how? Visit and sign up for more information at www.mybrainmatters.ca

What's Going On

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    Neuro-Palooza Fundraising Event

    IT’S GONNA ROCK!! 1st annual Neuro-Palooza!! July 27, 2013 8pm, Paris Fairgrounds -local musicians, door prizes, midnight lunch, 50/50 & more!! Purchase your tickets ($20) at The Fit Effect Gym Paris, Ontario front desk or e-mail darcy@rett.ca. This night is in support of the Ontario Rett Syndrome Association & ALS. Please help raise money for these worthy [...]

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    Help Sell Awareness Bracelets

    The fundraising committee is in need of some assistance in the sale of silicone awareness bracelets.  This would involve individuals to place bracelets and collection boxes in the communities they live in, similar to the poppy drive. It will require a maintenance of 1 visit every 1 to 2 weeks depending on sales.  This is [...]

  • Fundraiser by Alicia Martin

    I Alicia Martin, a grade 12 student at Stratford Northwestern Secondary School had recently put together a fundraiser to raise awareness and donations for the Ontario Rett Syndrome Association. I learned about Rett Syndrome by having the opportunity of working with a young student, Abby Congram through a Cooperative Education Program this year. After getting to [...]

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O.R.S.A. Tweets

Golf Day begins! Thanks to all who've come out to support our families with #RettSyndrome! #LdnON http://t.co/YTRhZeFylS
2 weeks ago
Tomorrow is our Silent Angel Golf Day in London! Thanks to all the organizers! Can't wait to golf & raise awareness for #RettSyndrome #LdnON
2 weeks ago
RT @OntarioRettSA: Great to have our Western Ontario families together in #StratfordON this weekend! Thanks to Dr. Eubanks for research updates. #RettSyndrome
3 weeks ago
Great to have our Western Ontario families together in #StratfordON this weekend! Thanks to Dr. Eubanks for research updates. #RettSyndrome
4 weeks ago

Join the Rett Conversation.

#RutasRunning http://t.co/js5EoYusxS calcetines Solidarios #Lurbel contra el Síndrome de #Rett mimundorett #running #outdoor #trai
1 week ago
Ava needs your help at the annual #AuctionforAva. Donations appreciated. #rettsyndrome http://t.co/zHUaDU8d98
1 week ago
It's 10pm and idk where to go or what to do bc I'm not with @joshbonzie @the_bencampbell @christopherdfox @elonggg @WilsonHKerr or #rett
1 week ago
RT @Telethonitalia: un RT per ricordare che la #rett deve essere sconfitta. Per Sofia, per i suoi genitori, per tutti i bambini http://t.co/CbYMcEdAa9
1 week ago

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